tag:blogger.com,1999:blog-26538027.post114655447993044147..comments2024-01-30T14:16:38.219+11:00Comments on PsychoBabble: Coping with chronic illnessHPhttp://www.blogger.com/profile/09409589783052980600noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-26538027.post-1146779134095017472006-05-05T07:45:00.000+10:002006-05-05T07:45:00.000+10:00jumpinpuddles,Thanks for visiting and commenting :...jumpinpuddles,<BR/>Thanks for visiting and commenting :)<BR/><BR/>tiesha's place<BR/>Thanks. A very valid point and, you'r right, a whole other post in that!<BR/><BR/>dreaming again,<BR/>Thanks for visiting. I hear what you're saying. I have several autoimmune conditions myself and the kind of reactions you describe are commonplace. People forget that everyone's journey with a chronic illness is different, even when they have the same condition. Lupus has many different degrees of severity. Stories of 'x' who has 'y' and does miraculous things with their life can get tiring really quickly. Much has been said about the 'fighting spirit' in cancer but it can actually be counterproductive. What has been shown to be important in research is that 'fighting spirit' is most beneficial when it is also grounded with a sense of reality.HPhttps://www.blogger.com/profile/09409589783052980600noreply@blogger.comtag:blogger.com,1999:blog-26538027.post-1146773809441944052006-05-05T06:16:00.000+10:002006-05-05T06:16:00.000+10:00excellent ... excellent. As someone with Lupus as ...excellent ... excellent. As someone with Lupus as well as Myasthenia Gravis .. I can't tell you how weird it is. (not to mention a couple of psychiatric diagnosis' like PSTD, depression and ED-NOS)<BR/><BR/>Difficult isn't the right word. Some days it seems down right impossible, other days I am so grateful for my life. So difficult doesn't fit.Weird does. <BR/><BR/>There are two primary reactions of other people, both tend to annoy me most of all ...<BR/><BR/>1. Those who understand what I'm going through and become overprotective of me.<BR/><BR/>2. Those who know someone who has what I have and aren't as bad off as I am so why can't I do what their friend, relative, neighbor co worker does? <BR/><BR/>(on man told me that he worked with a 28 year old man who had Myasthenia Gravis and had been told it was one of the worst cases known, and yet he still was a mechanic at American Airlines, so if he could hold down that job, what was wrong with me? <BR/>Well, first of all, you're out n out lying ..because American isn't going to let someone with Myasthenia Gravis ...who's first primary symptom is double vision be an airplane mechanic!<BR/>Second, it's younger women OLDER men who get it ... men over 60, so no, you don't know a 28 year old man with it. MS maybe, not MG, and it's not one of the worst cases known to doctors, we don't have one of those cases in Oklahoma.)<BR/><BR/>A year or so ago , I wrote this entry in my blog.http://pearlsanddreams.blogspot.com/2005/05/pain-scales-and-daily-living.html#comments<BR/><BR/>ok, shutting up nowDreaming againhttps://www.blogger.com/profile/15717590226520457326noreply@blogger.comtag:blogger.com,1999:blog-26538027.post-1146746121047866772006-05-04T22:35:00.000+10:002006-05-04T22:35:00.000+10:00Thanks for this post and the reference. I love thi...Thanks for this post and the reference. I love this stuff. I always like to keep in mind as well that psychiatric illness is also chronic, but that's a whole other post :).<BR/>Thanks for a great blog!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-26538027.post-1146735317096013452006-05-04T19:35:00.000+10:002006-05-04T19:35:00.000+10:00good blog many thanks :)good blog many thanks :)jumpinginpuddleshttps://www.blogger.com/profile/02701383598841540578noreply@blogger.com